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KMID : 1025620120150010096
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Korean Journal of Medical Ethics
2012 Volume.15 No. 1 p.96 ~ p.111
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Biobank and Broad Consent
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Kim Moon-Jeong
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Abstract
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The biobank, which is recently pursued by many countries, is supposed to play an important role for the development of the Biomedical science. Thus, I argue that there are a number of important ethical issues needed to be examined for the successful operation of the biobank. Especially, I’ve focused on “informed consent”, which is fundamental ethical norm in protecting donors’ safety and right. But the informed consent for the biobank has to be quite “broad” due to the intrinsically uncertain nature of the future research related to it, and social, for the unique characteristics of genetic information. Therefore the focus of this study is to examine “broad consent” as an alternative approach for protecting of sujects safety and right in using human biological materials and personal medical information.
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KEYWORD
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human genome research, Biobank, broad consent, UK Biobank, human biological materials, genetic information, privacy
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